Researcher seeking parents of children with Usher syndrome for study
November 7, 2016
The Usher Syndrome Coalition is posting this on behalf of the University of Alabama at Birmingham’s (UAB) Genetic Counseling Training Program.
UAB student Caitlin Wright is currently recruiting parents for a study examining the psychosocial impact on parents who have children diagnosed with Usher syndrome. With this study, they hope to compare parent experiences for those whose children received a diagnosis at a young age to those who received a diagnosis at a later age.
Participation involves a 30 minute interview in English (by phone or in person).