Usher Life is a forum for discussing day-to-day life for patients and families with Usher syndrome. The topics may be simple (ie, got any good gift ideas for a kid with Usher) or complex and emotional (ie, how do I tell my daughter she has Usher syndrome). It's a great place to get advice from others who understand your situation.
Usher Science is a forum for discussion of research and medical topics related to Usher syndrome. Attendees may be families, researchers, or physicians. It's a great place to get information on some the often complex science and medical topics related to Usher syndrome.
Click a href="http://usher-syndrome.org/index.cfm/pid/10726">here to join in the discussions.