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USH2019 Early Bird Extension + New Opportunities to Connect

OUR EARLY BIRD RATE HAS BEEN EXTENDED! Register by March 15, 2019 to save $50 on every adult registration.

11th Annual USH Connections Conference
Saturday, July 13, 2019

Philadelphia Marriott Downtown  
1201 Market Street
Philadelphia, PA 01907 USA

Click here to register today.

The Usher Syndrome Coalition team is working hard to give you the best Connections Conference yet. Here are some new activities you might be interested in: 


Ava's Voice, an official partner of the Usher Syndrome Coalition, is excited to offer a new program for children aged 10 to 18 to take place during the USH Connections Conference. Children participating in the USHthis Mini Camp will have the opportunity to gather with other kids impacted with Usher syndrome to share common experiences and participate in fun activities.


Please join Kadie Trauger and Danay Trest, who both have Usher syndrome, for an informal and fun social evening. This is a chance to meet, make connections and share information before the conference activities begin on Saturday.

WHEN: Friday, July 12, 2019
TIME: 6-8 PM

Please note: There will be no SSPs or interpreters provided as this is an informal gathering.

Contact Kadie Trauger for more information:

Take advantage of the early-bird rate and register today.

Attendee Rates:

Adult: Registration includes continental breakfast and lunch.
$100 Early Bird rate if you register by March 15th
$150 If you register between March 16th and April 30th
$200 If you register between May 1st and May 31st
$250 If you register between June 1st and June 30th
Child: Registration includes continental breakfast, onsite childcare (age 0-9) or Kids' Outing (age 10+), and lunch.

Special Requests Deadline: June 3, 2019 (Submit requests during registration for childcare, Interpreters, Sighted Guides, Assistive Listening Devices, Braille Materials, Dietary Restrictions, etc.)

Hotel Reservations Deadline: June 21, 2019 
Reserve your room online: 
or call Toll Free: 877-212-5752 and refer to the "Usher Syndrome Coalition conference"



Toll Free: 1-855-998-7437 (1-855-99-USHER)
Toll: 1-978-637-2625
Videophone: 1-631-533-9621


Krista Vasi, Executive Director:
Nancy O'Donnell, Director of Outreach:
Julia Dunning, Program Coordinator:


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