July 2015: 7th Annual Usher Syndrome Family Conference
7th ANNUAL USHER SYNDROME FAMILY CONFERENCE
Saturday, July 11th, 2015
New Orleans Downtown Marriott at the Convention Center
859 Convention Center Blvd
New Orleans, Louisiana 70130
EVENT LINKS:
Can't get the Mobile App? Click here to access the app's Event Site on any device for a list of attendees (Our #USHFAMILY) and other details.
ABOUT THE USHER SYNDROME FAMILY CONFERENCE
The Usher Syndrome Coalition presents the 7th Annual Usher Syndrome Family Conference, to be held on Saturday, July 11, 2015 at the New Orleans Downtown Marriott at the Convention Center. Join us to learn the latest about the causes, management and treatments of Usher syndrome, the most common cause of combined deafness and blindness.
The USH2015 program will include presentations on the progress of neuroprotection, gene therapy, drug therapy, and stem cell therapy to treat Usher syndrome, and the role of the Usher syndrome community in the search for a cure.
Our family panel discussion, research Q&A session, lengthy breaks and evening social allow for the opportunity to connect with others impacted by Usher syndrome and engage with researchers who are working tirelessly towards a cure.
Usher syndrome is most common cause of combined deafness and blindness. About 400,000 people are affected by this genetic disorder worldwide, with an estimated 50,000 people in the United States.
The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness, while providing information and support to individuals and families affected by Usher syndrome.
The Usher Syndrome Coalition brings together the passion and expertise of families and prominent researchers from around the world in an urgent movement to find a cure.
Join the #USH2015 experience by following us on Facebook and Twitter.
For more information, contact Krista Vasi at k.vasi@usher-syndrome.org.
