March 2012: Usher Syndrome Family Conference

Usher Syndrome Family Conference
Sponsored by the Megan Foundation and the Decibels Foundation.

To register, click here.

Saturday, July 7, 2012
Conference held at Chase Park Plaza Hotel, St. Louis, MO.
 

Special room rates available. Contact the Chase Park Plaza Hotel using Usher Syndrome Family Conference. 

Schedule:

  • 8:00 AM - 8:45 AM Registration
  • 8:45 AM - 9:00 AM Greetings and Introductions
  • 9:00 AM - 10:00 AM Dr. William Kimberling, University of Iowa - "Usher Syndrome:  Close to a Cure?"
  • 10:00 AM - 10:30 AM Break/Networking
  • 10:30 AM - 11:30 AM Dr. Margaret Kenna, Children's Hospital Boston - "Progressive Hearing Loss and Usher"
  • 11:30 AM - 12:45 PM Lunch/Networking
  • 12:45 PM - 1:45 PM Dr. Stephen Rose, Foundation Fighting Blindness - "Usher Research and the FFB"
  • 1:45 PM - 2:15 PM Mark Dunning, Coalition for Usher Syndrome Research - "The Usher Syndrome Registry"
  • 2:15 PM - 2:45 PM Break/Networking
  • 2:45 PM - 4:15 PM Family Panel
  • 4:15 PM- 4:30 PM Wrap-up
  • 6:00 PM - 8:00 PM BBQ in the Park

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