3rd Annual Usher Syndrome Family Conference

Sponsored by the Usher Syndrome Foundation and the Decibels Foundation

Friday, July 8, 2011
Conference held at Sturbridge Host Hotel, Sturbridge, MA


  • 8:00-9:00 Registration/Continental Breakfast
  • 9:00-9:15 Welcome from Mark Dunning, The Coalition for Usher Syndrome Research
  • 9:15-10:15 Introduction to Usher Syndrome and Potential Therapies: Dr. William Kimberling, University of Iowa 
  • 10:15-10:45 Break/Networking
  • 10:45-11:30 The Importance of Early Intervention for Usher Families: Dr. Margaret Kenna, Children's Hospital Boston
  • 11:30-1:00 Lunch/Networking
  • 1:00-1:45 The Genetics of Usher Syndrome: Dr. Heidi Rehm, Harvard Medical School Center for Hereditary Deafness
  • 1:45-2:00 Break/Networking
  • 2:00-2:45The Relationship Between Families and Usher Research: Mark Dunning, The Coalition for Usher Syndrome Research
  • 2:45-3:45 Usher Syndrome Family Panel
  • 3:45-4:00 Q&A/Wrap-up

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