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Webinar: Educational Considerations for Students with Usher Syndrome

Access Archived Webinar Here

Recording Date:
December 7, 2017

The Usher Syndrome Coalition estimates that there are more than 7,000 children with Usher syndrome in the United States. Yet in 2015, the state deaf-blind projects reported that roughly 300 children with Usher syndrome were served. Where are these students being educated? And are their educational needs being adequately met?

The contents of this webinar have been presented in two parts. In Part 1 the presenters give an overview of Usher syndrome, knowing what that means for your child, and first steps in creating an educational program. In Part 2 they go into a deeper discussion about individualized education plans (IEPs), accommodations, and modifications. They talk about specially designed instruction, who should be on your child educational team, the importance of making smooth transitions, and adult services. Throughout the two part series Carly Fredericks and Patti McGowan, both parents of children with Usher syndrome and Nancy O’Donnell, Director of the USH Trust Registry, shared personal stories and informative resources.


Carly Fredericks (New Jersey Consortium on Deafblindness / NFADB / Founder of Ava’s Voice)
Patti McGowan (Pennsylvania Deaf-Blind Project / NFADB)
Nancy O’Donnell (Usher Syndrome Coalition)

Coordinating Organizations:
National Center on Deaf-Blindness
The National Family Association for Deaf-Blind
Usher Syndrome Coalition

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