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USH Ambassadors for Florida

Darlene Laibl-Crowe

Darlene Laible-Crowe
Learn about Darlene from this recent article, The Modern Day Helen Keller: Darlene’s Story

Additionally, the Florida Usher Syndrome Support Group has been launched on Facebook.  This is a private group for those who have Usher syndrome, who are parents of children with Usher syndrome, and/or professionals who work with people with Usher syndrome in Florida. This is a place to support each other & network; share resources, news/updates & research on Usher syndrome; & spread awareness. Please feel free to invite others who have Usher syndrome & live in Florida. Know that you are not alone!

Contact Darlene at: ambassador.fl@usher-syndrome.org

Lynne Gilpatrick

Lynne Gilpatrick
Originally from RI/MA, my family and I moved to Clermont, Florida, in Lake County, in 2018.  I was diagnosed with Usher syndrome type 2 in 2016. I grew up wearing hearing aids and I currently have bilateral cochlear implants. I wear glasses & have low vision. I use a white cane. I was mainstreamed in school. I have a Master’s degree in Social Work. Prior to moving to Florida, I worked in Early Intervention for over 25 years, working with children birth-3 years old with developmental delays, & their families. I am married and I have 4 children. There is no history of Usher syndrome in my family. Since I stopped working in 2018 & we moved to Florida, I’ve become involved In spreading awareness. I would love to connect with you to continue to spread awareness!

Contact Lynne at: ambassador.fl2@usher-syndrome.org

Resources in Florida

  • The Florida Department of Health has information about the COVID vaccinations, as well as information about WHERE you can get a Covid vaccination. You can click on either the link to the place offering it or put in your location and it will show you a list of places offering the vaccinations.

  • For those who have Usher syndrome, who are parents of children with Usher syndrome, and/or professionals who work with people with Usher syndrome in Florida. This is a place to support each other & network; share resources, news/updates & research on Usher syndrome; and to spread awareness. Please feel free to invite others who have Usher syndrome & live in Florida. Know that you are not alone!

  • The FAVI Deaf-Blind Collaborative serves the entire state of Florida providing training and consultation services to the families and educational teams of Florida’s children and young adults (ages 0-22) with concurrent hearing loss and vision loss.

  • Program and services for youth and adults with combined vision and hearing loss.

  • Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

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