USH Ambassadors for Arizona - Shanna and Adam
Shanna is an audiologist and mother of an adult child with type II Usher syndrome. She has spoken extensively about hearing loss and Usher syndrome and is an expert in hearing technology. Dr. Dewsnup has been the motivational keynote speaker for two large conferences, sharing her own personal parent journey through her child’s Usher diagnosis and the impact it has made in her life.
Dr. Dewsnup founded Happy Ears Hearing Center with her husband, Kevin, in Arizona. They have a merged family with 5 children. Her oldest son Brenden, who is now 22 years old, has five degrees of central vision, is an accomplished piano performance major at Grand Canyon University, and lives on campus with ‘Diesel’, his seeing-eye dog.
Watch Shanna's presentation at the 2020 USH Connections Conference, "The Best Hearing Technology for Usher Syndrome."
Contact Shanna at: email@example.com
Adam Bailey is a 34-year-old with USH2A, is hard of hearing and legally blind. He graduated from the University of Washington with a BS degree, and worked as a project manager for large aerospace projects. Adam lives in Arizona with his guide dog Mica. An avid reader and always on the move, he enjoys weight lifting, swimming, hiking, and DIY projects.
Contact Adam at: firstname.lastname@example.org
Resources for Arizona
ACBVI is an excellent resource for vocational rehabilitation and mobility/life skills training. They offer recreational classes (like woodworking) and have several clubs (both in-person and virtual). There is also a support group to offer emotional support for people who are working through the loss of going blind.
The Arizona Deafblind Project provides technical assistance, training, and support for children and youth who have a combined vision and hearing loss, their families, educators, and service providers. The Project has a main office on the Tucson Campus of ASDB, with a satellite office in Phoenix at the Desert Valleys Regional Cooperative program.
This page was started to bring together the Usher Syndrome (USH) Community in Arizona and nearby states. Let's help support each other.
Program and services for youth and adults with combined vision and hearing loss.
Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.
This free and confidential registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.