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Age 14 and older

When a student reaches 14 years of age, their educational team starts to look ahead to life after school. Will the student wish to pursue college? Trade school? Enter the work force? Are these even options for children with Usher syndrome? Of course! This is the time when your child should start to take the reigns on learning to advocate for themselves, if they haven't already.

Your teenager may want to check out our new section "Just for Young Adults

For Young Adults 17 to 27

Just for Young Adults includes stories/suggestions from college-age students who are passing on their experiences to their younger peers.

A FB group for young adults so that they can communicate privately with each other on topics relevant to them. It is facilitated by one of our volunteers, a woman with Usher syndrome. The group meets on Zoom calls as well. Email:

Our USH Partner, Ava's Voice, hosts USHthis Summer Youth Camp for campers with Usher syndrome. Young adults with Usher, ages18 to 24 can apply to be a lead counselor. Ava's Voice is an official partner of the Usher Syndrome Coalition. For more information about the camp, go to Ava's Voice

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