Welcome Parents!
When parents learn that their child (or children) have Usher syndrome, it often comes as a shock. In most cases, there is no one else in the family with Usher syndrome. Parents may experience a broad range of feelings and wonder what to do with this information. You are not alone. Other families are on this journey too.
Frequently asked questions about Usher syndrome
Tips for Individuals of All Ages
Trainings and Webinars
Resources
