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Welcome Parents!

When parents learn that their child (or children) have Usher syndrome, it often comes as a shock. In most cases, there is no one else in the family with Usher syndrome. Parents may experience a broad range of feelings and wonder what to do with this information. You are not alone. Other families are on this journey too.

What is Usher syndrome?

Frequently asked questions about Usher syndrome

Tips for Individuals of All Ages

Tips for Parents

Birth to Age 5

School Years

Transition to Adult Life

Trainings and Webinars


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