Every state has a state project for deaf-blind children which 1) identifies children with combined vision and hearing loss in your state and 2) provides training and support to the schools that serve your child. Family supports are available as well. Find your state deaf-blind project here.
In 2017, the National Center on Deaf-Blindness hosted a webinar on Educational Considerations for Students with Usher Syndrome. Nancy O'Donnell of the Usher Syndrome Coalition co-presented with Patti McGowan and Carly Fredericks - parents of children with Usher syndrome. Patti and Carly provided a great overview of the services and supports their children receive as well as general tips on advocacy. We highly recommend it!
From audiologists to ophthalmologists to educators at your child’s school, you’ll want to have access to a variety of professionals that will not only support your child, but provide a sense of support for you as a parent. Seek providers who will patiently address your concerns, and who will aid you in advocating for what’s best for your child and his or her needs.