Build a strong team. From audiologists to ophthalmologists to educators at your child’s school, you’ll want to have access to a variety of professionals that will not only support your child but provide a sense of support for you as a parent, as well. Seek providers who will patiently address your concerns, and who will aid you in advocating for what’s best for your child and his or her needs.
Check out this 2017 webinar, sponsored by the National Center on Deaf-Blindness, in which parents and professionals Carly Fredericks and Patti McGowan share their tips on "Educational Considerations for Students with Usher Syndrome."
Here are some "Special Education Tips" in ASL: https://www.youtube.com/watch?v=tLpY8kulZPk