USH Event Calendar
We believe the key to finding viable treatments for Usher syndrome is the development of a strong Usher syndrome community, our #USHFamily.
Participating in USH events helps our community grow. Just bookmark this page and check back often for the latest programs and events.
Our USH2021 event is scheduled throughout the week of May 10. These dates are a departure from our usual July event in order to complement the Usher 1F Collaborative’s virtual scientific research conference, May 13-14. Similar to our format last year, live sessions and pre-recorded presentations will be available leading up to the Usher 1F Collaborative's research conference, and closing on Saturday, May 15.
The Usher Syndrome Coalition's USH Connections Conference is dedicated to:
- Connecting you with the global Usher syndrome community, your USH Family.
- Providing clear and accessible updates on progress to treat multiple types of Usher syndrome.
- Sharing resources and community perspectives that can help you and your family live your best lives with Usher syndrome.
The autumnal equinox marks the start of days that contain more darkness than light. It is a great metaphor for the threat of Usher syndrome. We want to Own the Equinox, claiming the third Saturday in September as Usher syndrome awareness day. But to do so, we need your help. We want this to be a worldwide event that starts on one side of the world (we're looking at you, Australia) and runs around the globe to the farthest point before the international date line (that’s your cue, Alaska).