We believe the key to finding viable treatments for Usher syndrome is the development of a strong Usher syndrome community, our #USHFamily.
Participating in USH events helps our community grow. Just bookmark this page and check back often for the latest programs and events.
A broad alliance of institutions presents the fourth International Scientific and Patient Symposium on Usher Syndrome in Mainz, Germany at Atrium Hotel.
The International Symposium on Usher Syndrome will convene on July 19-21, 2018, bringing together researchers, clinicians, geneticists and specialists to present the latest research and developments in Usher Syndrome. The meeting will enable the exchange of ideas and knowledge among different disciplines in order to facilitate new research and progress that focuses on Usher Syndrome.
The International Patient Symposium (USH Connections Conference) will convene on July 21, 2018, bringing together professionals with those affected by Usher Syndrome around the world. This unprecedented combination of events is expected to engage the largest number of constituents in the history of the Usher Syndrome community in the world.
The autumnal equinox marks the start of days that contain more darkness than light. It is a great metaphor for the threat of Usher syndrome. We want to Own the Equinox, claiming the third Saturday in September as Usher syndrome awareness day. But to do so, we need your help. We want this to be a worldwide event that starts on one side of the world (we're looking at you, Australia) and runs around the globe to the farthest point before the international date line (that’s your cue, Alaska).