We believe the key to finding viable treatments for Usher syndrome is the development of a strong Usher syndrome community, our #USHFamily.
Participating in USH events helps our community grow. Just bookmark this page and check back often for the latest programs and events.
Usher syndrome is the most common form of hereditary deaf-blindness. A broad alliance of institutions presents the 4th International Scientific Symposium on Usher Syndrome and the International Patient Symposium (10th Annual USH Connections Conference) at the Johannes Gutenberg University of Mainz, Germany.
The International Symposium on Usher Syndrome will convene at the Atrium Hotel Conference Centre, Mainz on July 19-20, 2018, bringing together the world’s leading experts from different fields of research (diagnostics, genetics, therapy, structural, molecular and cell biology) to present the latest developments in Usher syndrome. The 2-day research symposium will enable the exchange of ideas and knowledge among scientists, clinicians and geneticists in order to facilitate novel research and insights in therapeutic strategies for Usher syndrome.
The International Patient Symposium (USH Connections Conference) will convene on July 21, 2018, bringing together professionals with those affected by Usher syndrome around the world. Experts will provide summaries of the scientific symposium in layman’s terms and highlight the progress in therapeutic options. Psychological aspects and healthcare issues will be discussed from a patient’s point of view.
Registration and more details: www.ush2018.org
Early Bird Registration Deadline: March 31, 2018
The autumnal equinox marks the start of days that contain more darkness than light. It is a great metaphor for the threat of Usher syndrome. We want to Own the Equinox, claiming the third Saturday in September as Usher syndrome awareness day. But to do so, we need your help. We want this to be a worldwide event that starts on one side of the world (we're looking at you, Australia) and runs around the globe to the farthest point before the international date line (that’s your cue, Alaska).