Own the Equinox Day 21: Roads to Be Travelled
September 12, 2016
by Moira M. Shea
Moira Shea has Usher syndrome 2A. She serves as vice chair for the Usher Syndrome Coalition. Moira has been involved in this fight to eradicate Usher syndrome for over 40 years.
She served on the Board of Directors for the Foundation Fighting Blindness for 35 years. Moira retired as a federal executive from the US government, which includes 5 years on Capitol Hill.
Finnegan and I need to train for this and get into shape. I got into the doldrums of summer with the very hot weather. Finnegan also has been house bound and recovering from an herniated disc. However with PT, Finnegan has recovered, and has gotten the green light to go with me to Italy. I would not be able to do this trip without him.
So…starting on August 23rd and for 26 days until Usher Syndrome Awareness Day on September 17th, Finnegan I will exercise for at least one hour a day to be ready for our walking tour.
The Usher Syndrome Coalition is building a global community. Our Own the Equinox adventure will spread from Australia to Alaska. As a community and a coalition, we have created a very vital registry, we raise public awareness, connect researchers with the Usher community, and we have lobbied Capitol Hill to make Usher syndrome research a higher priority at the National Institutes of Health.
We are all working together to eradicate Usher syndrome from the face of this earth, and we will win.
If you are interested in supporting Moira, you can go to www.classy.org/moirashea.