February 4, 2013
Jessica Chaikof is a teenager with Usher syndrome. She wrote this poem for her high school English class and has graciously allowed us to reprint it here.
By Jessica Chaikof
I don’t know how, but it’s going to happen
I have to accept it, even though I don’t want to.
Soon darkness will surround me.
Cutting off, everything I know.
Soon I will not be able to see past, present, or future.
The only thing that I will be able to see...
Is complete utter darkness and blackness
I don’t know what to do.
Should I accept it, or deny it?
What should I choose?
Both of these paths will go in the same direction, and end in the same spot
Why should I choose, when the result is going to be the same?
Should I hope that things will change?
Or should I just give up?
But when all seems lost…
There is always a chance of hope left.
That tiny, little, ounce, and ember of hope.
It’s still there and will always be there.