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Learn More about usher syndrome

What is an USH Ambassador?

An USH Ambassador is a volunteer who is knowledgeable about Usher syndrome and the community, and is willing to be a point of contact in their state or country. Ambassadors educate their community about Usher syndrome and the USH Trust Registry*; provide information and resources; connect with others in their state/country and; may represent the Coalition at community activities such as workshops and conferences.

Ambassadors play a key role in growing our community. Within their areas, states, or countries, they are reaching out to agencies and organizations that work with or serve children and adults with Usher, and their families. They are also reaching out to you – individuals living with Usher - and building the Usher community worldwide, one person at a time.  There is strength and hope in numbers.

If you'd like to learn more about becoming an USH Ambassador, please fill out a volunteer application.

*The USH Trust registry is the largest international registry exclusively for individuals with Usher syndrome.

What We Do

Meet Our Ambassadors - USA


AZ- email Shanna Dewsnup

CA -  email Katrina Stanley


ID - email Ashley Stewart

KS - email William Wilkerson

MO - email Al Alvord 

MN - email Maya Larson

MN - email Trevor Turner

MS - email Danay Trest


PA - email Lisa Lopatofsky

TN - email John Johnson


VA - email Tim Chambers or  Megan Lengel

WA - email Carleton Bulkin


Meet Our International Ambassadors


Dominican Republic - email Carlito Morrobel

France - email Mayank Agarwal

India - email Nilam Argawal

Mexico - email Diana Velarde 

Mexico - email Jorge Cantu



Ambassadors are supporting and building the Usher community.

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