What is an USH Ambassador?

An USH Ambassador is a volunteer who is knowledgeable about Usher syndrome and the community, and is willing to be a point of contact in their state or country. Ambassadors educate their community about Usher syndrome and the USH Trust Registry*; provide information and resources; connect with others in their state/country and; may represent the Coalition at community activities such as workshops and conferences.

Ambassadors play a key role in growing our community. Within their states, they are reaching out to agencies and organizations that work with or serve children and adults with Usher, and their families. They are also reaching out to you – individuals living with Usher.

If you'd like to learn more about becoming an USH Ambassador, please fill out a volunteer application .

*The USH Trust registry is the largest international registry exclusively for individuals with Usher syndrome.