What is an USH Ambassador?
An USH Ambassador is a volunteer who is knowledgeable about Usher syndrome and the community, and is willing to be a point of contact in their state or country. Ambassadors educate their community about Usher syndrome and the USH Trust Registry*; provide information and resources; connect with others in their state/country and; may represent the Coalition at community activities such as workshops and conferences.
Ambassadors play a key role in growing our community. Within their areas, states, or countries, they are reaching out to agencies and organizations that work with or serve children and adults with Usher, and their families. They are also reaching out to you – individuals living with Usher - and building the Usher community worldwide, one person at a time. There is strength and hope in numbers.
*The USH Trust registry is the largest international registry exclusively for individuals with Usher syndrome.
What We Do
Meet Our Ambassadors - USA
ID - email Ashley Stewart
MO - email Al Alvord
MN - email Trevor Turner
MS - email Danay Trest
TN - email John Johnson
Meet Our International Ambassadors
Dominican Republic - email Carlito Morrobel
France - email Mayank Agarwal
India - email Nilam Argawal
Mexico - email Diana Velarde
Mexico - email Jorge Cantu
Ambassadors are supporting and building the Usher community.