Skip to main content
A silhouette of a group of people on a beach at dusk

Meet your USH Family

Children and adults living with Usher syndrome lead full, productive, and satisfying lives.

The Usher Syndrome Coalition community brings together the passion and expertise of these individuals, along with their families, service providers, researchers, and professionals from around the world. We call this vibrant, growing community "The USH family.."

The links below will introduce you to the stories of individuals living with Usher syndrome of all types. 

  • Brenden
  • Recently diagnosed with Usher syndrome, Monica walks her followers through her diagnosis and adjustment to life with Usher syndrome.

Powered by Firespring