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X-WR-CALDESC:The third Saturday in September is Usher Syndrome Awareness Da
 y\, Celebrating our Growing Global Community\n\nUsher Syndrome Awareness D
 ay seeks to bring attention to the most common genetic cause of combined d
 eafness and blindness. By raising awareness around the world\, we connect 
 those living with Usher syndrome and accelerate research towards treatment
 s and a cure. \n\nWhat is Usher syndrome?\n\nUsher syndrome (USH) is a rar
 e inherited condition - passing from parents to children - that impacts th
 ree major senses in the body: vision\, hearing and balance. It is estimate
 d to affect at least 25\,000 people in the United States and over 400\,000
  worldwide. There are three clinical types of Usher syndrome: Type 1 usual
 ly causes profound deafness at birth\, vestibular (balance) dysfunction an
 d progressive vision loss\; Type 2 usually causes moderate to severe heari
 ng loss at birth and progressive vision loss\; Type 3 usually causes later
  onset progressive hearing loss and progressive vision loss.\n\nWhy the th
 ird Saturday in September?\n\nIn 2015\, the Usher Syndrome Coalition\, an 
 organization of individuals and families working to build the global USH c
 ommunity and speed the search for a cure\, declared the third Saturday in 
 September as our global “Usher Syndrome Awareness Day.” This day falls nea
 r the autumnal equinox in the northern hemisphere\, marking the start of d
 ays that contain more darkness than light - a powerful metaphor for the th
 reat of Usher syndrome.
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DTSTART:20221106T020000
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UID:ac3df0ba-ac31-41db-a1b3-ff8291c32fbb
DTSTAMP:20260914T133258Z
DESCRIPTION:The third Saturday in September is Usher Syndrome Awareness Day
 \, Celebrating our Growing Global Community\n\nUsher Syndrome Awareness Da
 y seeks to bring attention to the most common genetic cause of combined de
 afness and blindness. By raising awareness around the world\, we connect t
 hose living with Usher syndrome and accelerate research towards treatments
  and a cure. \n\nWhat is Usher syndrome?\n\nUsher syndrome (USH) is a rare
  inherited condition - passing from parents to children - that impacts thr
 ee major senses in the body: vision\, hearing and balance. It is estimated
  to affect at least 25\,000 people in the United States and over 400\,000 
 worldwide. There are three clinical types of Usher syndrome: Type 1 usuall
 y causes profound deafness at birth\, vestibular (balance) dysfunction and
  progressive vision loss\; Type 2 usually causes moderate to severe hearin
 g loss at birth and progressive vision loss\; Type 3 usually causes later 
 onset progressive hearing loss and progressive vision loss.\n\nWhy the thi
 rd Saturday in September?\n\nIn 2015\, the Usher Syndrome Coalition\, an o
 rganization of individuals and families working to build the global USH co
 mmunity and speed the search for a cure\, declared the third Saturday in S
 eptember as our global “Usher Syndrome Awareness Day.” This day falls near
  the autumnal equinox in the northern hemisphere\, marking the start of da
 ys that contain more darkness than light - a powerful metaphor for the thr
 eat of Usher syndrome.
DTSTART;TZID=America/New_York:20230916T000000
DTEND;TZID=America/New_York:20230916T235900
LOCATION:Global
SUMMARY:Usher Syndrome Awareness Day
END:VEVENT
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