Board of Directors
STAFF
BOARD OF TRUSTEES
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Edward S. Cohn, MD
Retired, Staff Otolaryngologist, Boys Town National Research Hospital
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In Memoriam: Director, Center for the Study and Treatment of Usher Syndrome, Boys Town National Research Hospital
Professor, University of Iowa Carver School of Medicine -
Director, Laboratory of Molecular Medicine, Partners Healthcare Personalized Medicine
Associate Professor of Pathology, Harvard Medical School -
John Roy
Parent of a child with Usher syndrome
Owner, Atlas Scaffolding & Equipment