These organizations provide support to the Usher syndrome community.
The mission of the Helen Keller National Center for Deaf-Blind Youths and Adults is to enable each person who is deaf-blind to live and work in his or her community of choice. Authorized by an Act of Congress in 1967, HKNC is a national rehabilitation program serving youth and adults who are deaf-blind.
Sense is a national charity that supports and campaigns for children and adults who are deafblind or have sensory impairments. They have been supporting people who have sensory impairments to enjoy more independent lives for the last 60 years.