News and Announcements
Date	Description	Type
05.03.13	Physical and Psychological Health in Persons with Deafblindness Due to Usher Syndrome Type II By Moa Wahlqvist, Claes Moller, Kerstin Moller, and Berth Danermark. Journal of Visual Impairment & Blindness, May-June 2013	Research
05.02.13	Fifth Annual Usher Syndrome Family Conference Held in Portland, Oregon on July 13th, 2013. Click here for more details and to register.	Announcements
03.21.13	Passable Landscapes, Bente Ramsing, The National Board of Social Services, Denmark, 2013 Danish research by Ph.D. Jesper Dammeyer, in cooperation with educational consultant Bente Ramsing, shows that more than half of all children with Usher Syndrome develop symptoms of psychosocial dissatisfaction before the age of 18.	Research
02.05.13	Rescue of Hearing and Vestibular in Mouse Model New research shows that hearing and vestibular function can be rescued in a mouse model of Usher 1c using an antisense oligonucleotide.	Drug-based Therapy
02.04.13	Concerns about Gene Therapy? A new study questions whether gene therapy actualy saves the rods and cones.	Gene Therapy
01.30.13	Study on Mental and Behavioral Issues in Children with Usher A study of 26 Usher children in Denmark and the frequency of mental and behavioral issues.	Research
01.25.13	Altering eye cells may help preserve vision in RP A Washington University study is altering the genes in cone cells.	Gene Therapy
12.06.12	Progress on Usher Syndrome Research Uwe Wolfrum and his colleagues as Johannes Gutenberg University Mainz are increasing our understanding of Usher syndrome.	Drug-based Therapy
11.20.12	Update from Oxford BioMedica on Usher Trials Positive results so far from the Usher 1b trials.	Gene Therapy
10.10.12	Novel Gene Associated with Usher Syndrome A team of researchers from multiple institutions reported a novel type of gene (CIB2) associated with Usher syndrome in the November 2012 issue of Nature Genetics.	Research
09.11.12	An Artificial Retina with the Capacity to Restore Normal Vision Cornell researchers developing artificial retina	Retinal Implants
07.23.12	BioDiem delivers more positive results for eye disease drug BDM-E has received Orphan Drug designation from the United States Food and Drug Administration for the treatment of the inherited degenerative eye disorder, retinitis pigmentosa.	Drug-based Therapy
06.20.12	Stem Cell Treatment for RP Planned for Late 2013 ReNeuron, a stem cell development company in the United Kingdom, is planning to file for regulatory approval in late 2013 to launch a clinical trial of a stem cell treatment for people with retinitis pigmentosa.	Stem-cell Therapy
06.15.12	New Usher Gene Discovered June 15, 2012 – Researchers conducting a genetic study of Old Order Amish and Mennonite populations have identified five new genes in which defects cause congenital diseases, including a previously unidentified type of Usher syndrome, type 3B. Caused by m	Research
03.30.12	Usher Syndrome Family Conference Registration is now open for the second annual Usher Syndrome Family Conference in St. Louis, Missouri on July 7th, 2012	Announcements
03.13.12	Usher Researchers Win Prize Christine Petit and Karen Steel won the Brain Prize of 1 million euros in part for their researc on Usher syndrome.	Announcements
02.09.12	LCA Gene Therapy Reaction Similar gene therapies are in the works for Usher syndrome.	Announcements
01.11.12	Variant of Usher Syndrome Gene Preserves Vision and Balance the NIDCD has found some mutations of the same genes that cause Usher syndrome can cause hearing loss alone, without any accompanying blindness or balance problems.	General
10.20.11	FDA Approves UshStat Clinical Trial Oxford Biometica application for phase I/IIa clinical trials approved for gene therapy treatment of Usher type 1b.	Gene Therapy
09.01.11	Pill drug could fight blindness An active component of the contraceptive "mini-Pill" can reverse a genetic eye condition that normally leads to blindness, research has shown.	Drug-based Therapy
07.05.11	PTC124 Treatment for Usher 1c New treatment for nonsense mutations may soon be ready for use in Usher syndrome patients	Drug-based Therapy
06.08.11	Bionic Eye Wins EU Safety Approval The artificial retina is the first device of its kind to move from the laboratory to the clinic, after a trial of 30 patients has shown that it can safely restore some vision to people who have lost their sight to a genetic disease.	Announcements
06.01.11	Usher Syndrome Family Conference Registration is now open for the second annual Usher Syndrome Family Conference in Sturbridge, MA.	Announcements
04.18.11	CNTF Implant Shows Promise Neurotech's implant demonstrates photoreceptor preservation in patients with Usher.	Drug-based Therapy
04.11.11	Real Retinas Grown in Eye Lab Researchers in Japan have discovered a way to coax mouse embryonic stem cells into forming an eyelike structure.	Stem-cell Therapy