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Usher Syndrome Family Conference
Sponsored by the Usher Syndrome Foundation and the Decibels Foundation.
To register, click here.
Schedule
| 8:00-9:00 |
Registration/Continental Breakfast |
| 9:00-9:15 |
Welcome
Mark Dunning, The Coalition for Usher Syndrome Research
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| 9:15-10:15 |
Introduction to Usher Syndrome and Potential Therapies
Dr. William Kimberling, University of Iowa |
| 10:15-10:45 |
Break/Networking |
| 10:45-11:30 |
The Importance of Early Intervention for Usher Families
Dr. Margaret Kenna, Children's Hospital Boston
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| 11:30-1:00 |
Lunch/Networking |
| 1:00-1:45 |
The Genetics of Usher Syndrome
Dr. Heidi Rehm, Harvard Medical School Center for Hereditary Deafness
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| 1:45-2:00 |
Break/Networking |
| 2:00-2:45 |
The Relationship Between Families and Usher Research
Mark Dunning, The Coalition for Usher Syndrome Research
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| 2:45-3:45 |
Usher Syndrome Family Panel |
| 3:45-4:00 |
Q&A/Wrap-up |
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