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Usher Syndrome Family Conference

Type:  Announcements  

Usher Syndrome Family Conference
Sponsored by the Usher Syndrome Foundation and the Decibels Foundation.

To register, click here.


Friday, July 8, 2011
Conference held at Sturbridge Host Hotel, Sturbridge, MA


8:00-9:00 Registration/Continental Breakfast


Mark Dunning, The Coalition for Usher Syndrome Research

9:15-10:15 Introduction to Usher Syndrome and Potential Therapies
Dr. William Kimberling, University of Iowa 
10:15-10:45 Break/Networking

The Importance of Early Intervention for Usher Families

Dr. Margaret Kenna, Children's Hospital Boston

11:30-1:00 Lunch/Networking

The Genetics of Usher Syndrome

Dr. Heidi Rehm, Harvard Medical School Center for Hereditary Deafness

1:45-2:00 Break/Networking

The Relationship Between Families and Usher Research

Mark Dunning, The Coalition for Usher Syndrome Research

2:45-3:45 Usher Syndrome Family Panel
3:45-4:00 Q&A/Wrap-up