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Usher Syndrome Family Conference

Type:  Announcements  

Usher Syndrome Family Conference
Sponsored by the Usher Syndrome Foundation and the Decibels Foundation.
 

To register, click here.

 

Friday, July 8, 2011
Conference held at Sturbridge Host Hotel, Sturbridge, MA
 

Schedule

8:00-9:00 Registration/Continental Breakfast
9:00-9:15

Welcome

Mark Dunning, The Coalition for Usher Syndrome Research

9:15-10:15 Introduction to Usher Syndrome and Potential Therapies
Dr. William Kimberling, University of Iowa 
10:15-10:45 Break/Networking
10:45-11:30

The Importance of Early Intervention for Usher Families

Dr. Margaret Kenna, Children's Hospital Boston

11:30-1:00 Lunch/Networking
1:00-1:45

The Genetics of Usher Syndrome

Dr. Heidi Rehm, Harvard Medical School Center for Hereditary Deafness

1:45-2:00 Break/Networking
2:00-2:45

The Relationship Between Families and Usher Research

Mark Dunning, The Coalition for Usher Syndrome Research

2:45-3:45 Usher Syndrome Family Panel
3:45-4:00 Q&A/Wrap-up