News and Announcements
Date	Description	Type
06.17.10	Aminoglycosides Have Promise as Usher Treatment There are several types of genetic mutations involved in Usher syndrome, including nonsense mutations. Aminoglycocides may suppress this type of mutation.	Announcements
06.14.10	Genetic Modifier In Usher Syndrome Dr Hanno Bolz says that his team's research challenges the traditional view that USH was inherited as a single gene disorder, and shows that it may result from at least two different genetic mutations.	Research
05.17.10	Emma Handford Emma is married and lives with her hubby Mike and 2 cats, Jammy and Jinx, in the sometimes sunny England. She decided to start blogging to tell others of how she's coped so far suffering from Ushers Syndrome.	Blog
04.10.10	Gene Therapy for Mouse Vision Gene delivery to mitotic and postmitotic photoreceptors via compacted DNA nanoparticles results in improved phenotype in a mouse model of retinitis pigmentosa	Gene Therapy
02.03.10	Cell-Based Treatment Preserves Vision in Usher Syndrome Model A research team funded by the Foundation Fighting Blindness has used cell transplantation to restore vision in a mouse model of Usher syndrome type 2A.	Research
11.23.09	Alstrom syndrome misdiagnosed as Usher Alstrom Syndrome UK would like you to be aware that Alstrom syndrome can be misdiagnosed as Usher syndrome. Learn more about Alstrom Syndrome here.	Announcements
11.23.09	Auction to benefit Usher research Irene Goodman, Literary Agent, is pleased to announce an eBay event that will auction off 25 critiques of partial manuscripts to the top 25 bidders, starting Dec. 1st. All proceeds will go directly to the Foundation Fighting Blindness and the Deafness Re	Announcements
11.18.09	Gene Therapy Success It's not Usher related, but the successful treatment of two children with ALD could impact gene therapy as an RP treatement.	Drug-based Therapy
10.25.09	Gene therapy transforms eyesight of 12 born with rare defect Pennsylvania researchers using gene therapy have made significant improvements in vision in 12 patients with a rare inherited visual defect, a finding that suggests it may be possible to produce similar improvements in a much larger number of patients wit	Research
10.13.09	Amanda - Cyborg Now Amanda, age 21 who has Usher Syndrome Type 1, writes from New Zealand	Blog
10.13.09	Christine - Tactile the World Christine lives in Ottawa, Canada, and has Usher Syndrome Type 1	Blog
10.13.09	Andrea - Elliott's Journey Andrea from Indiana writes about her son who has Usher Syndrome and bilateral cochlear implants	Blog
10.13.09	"Jelly" - New Jersey "Jelly" from New Jersey writes of her life with Usher Syndrome	Blog
10.13.09	Blind Insight Father with Usher Syndrome	Blog
10.01.09	Fertilizer and Roses The Dunning Family stumbles through life with Usher and other calamities.	Blog
09.28.09	Children's Costume Party Join us Sunday, October 18th at Codman Farm in Lincoln, MA.	Announcements
09.28.09	A Chip For The Eye: Artificial Vision Enhancers Being Put To The Test Report on efforts of a team in Germany to develop an electronic retinal prosthesis	Research
07.01.09	DeafBlind International European Conference The DeafBlind International 7th European Conference will be held September 22-27 in Senigallia, Italy.	Announcements
06.23.09	Frontiers Conference 2009 Read the presentations delivered by Dr. William Kimberling and Dr. Uwe Wolfrum to the Frontiers Conference held at Harvard Medical School.	Announcements
05.01.09	Firm Working on Usher Syndrome Treatment News on Oxford BioMedica, a Paris firm creating UshStat, which aims to deliver a corrected version of the MYO7A gene to treat usher syndrome.	Research
04.14.09	Deaf Blind day on Beacon Hill Join AG Bell for a chance to meet with Massachusetts State Representative and Senators to discuss the needs of deaf blind citizens.	Announcements
03.17.09	A Significant Step To Understanding Usher Syndrome It has been discovered that a myonsin protein connected to Usher syndrome works differently from many other myosins.	Research
12.02.08	Congressional Briefing on Usher syndrome The Alliance for Eye and Vision Research, in conjuction with The Foundation Fighting Blindness, is holding a congressional briefing on Usher syndrome on February 5th. Coalition member Bill Kimberling will be the main speaker.	Announcements
12.01.08	Bill - Age 46 I had a crazy idea at age 45. I decided to climb Mount Kilimanjaro with no previous climbing experience. I never imagined the power of an idea would land me in the local, regional, national and international media. I never imagined that I would travel the	Sucess Stories
07.10.08	Bella - Age 9 Bella is fearless, energetic, popular child who speaks flawless English, loves art and dancing, is an accomplished equestrian, and is soon to join the school chorus. She also has Usher Syndrome, was born profoundly deaf, and is experiencing the onset of	Sucess Stories