News and Announcements
Date	Description	Type
06.23.09	OtoChip Test for Hearing Loss and Usher Syndrome A new clinical test called the OtoChipTM Test for Hearing Loss and Usher Syndrome was launched yesterday. This test sequences ~70,000 bases of DNA across 19 genes involved in hearing loss and Usher syndrome.	Research
06.15.09	New Stem Cell Therapy May Eventually Lead To Treatment For Deafness The transplantation of stem cells that are capable of producing functional cell types might be a promising treatment for hearing impairment.	Research
06.15.09	Neurotech's NT-501 Phase 2 RP Studies Demonstrate Consistent Biologic effect. Neurotech Pharmaceuticals, Inc., today announced that the Company's product candidate, NT-501 demonstrated a strong biologic effect in two Phase 2 clinical trials for retinitis pigmentosa (RP)	Research
05.01.09	Study on Cochlear Implants for Children with Combined Hearing and Vision Loss Very little research-based information exists about the benefits and challenges of cochlear implants for children who are deaf or hard of hearing, who also have a vision impairment. A new study aims to remedy that.	Research
05.01.09	Firm Working on Usher Syndrome Treatment News on Oxford BioMedica, a Paris firm creating UshStat, which aims to deliver a corrected version of the MYO7A gene to treat usher syndrome.	Research
04.29.09	Study offers clues to beating hearing loss Researchers at the University of Leeds have made a significant step forward in understanding the causes of some forms of deafness.	Announcements
04.20.09	Rene Rene is the coordinator of the Northern Vermont Resource Center, part of the Vermont Center for the Deaf and Hard of Hearing. He supervises eight employees on his staff.	Sucess Stories
04.14.09	Deaf Blind day on Beacon Hill Join AG Bell for a chance to meet with Massachusetts State Representative and Senators to discuss the needs of deaf blind citizens.	Announcements
03.29.09	The TODAY Show features a Courageous Woman with Ushers Syndrome Rebecca Alexanders inspiring story was featured on NBC’s TODAY, which included an interview with Meredith Vieira and Rebecca's brother, Peter Alexander. Peter is an NBC News correspondent. The feature also includes a video about Rebecca’s determination	Announcements
03.17.09	A Significant Step To Understanding Usher Syndrome It has been discovered that a myonsin protein connected to Usher syndrome works differently from many other myosins.	Research
03.14.09	VisionWalk - San Antonio Raises $115,000 VisionWalk is the national signature fundraising event of the Foundation Fighting Blindness. VisionWalk San Antonio was held March 14th at Brackenridge Park in San Antonio, Texas.	Announcements
02.12.09	Usher speed skater ranked 19th internationally One of the fastest speed skaters in the world has Usher syndrome type 2. Kevin Frost, 41, is ranked 19th internationally.	Announcements
02.12.09	Usher Session at EHDI Conference Bill Kimberling will be conducting a plenary session at the Early Hearing Detection and Intervention conference in Dallas on March 9-10, 2009.	Announcements
12.02.08	Congressional Briefing on Usher syndrome The Alliance for Eye and Vision Research, in conjuction with The Foundation Fighting Blindness, is holding a congressional briefing on Usher syndrome on February 5th. Coalition member Bill Kimberling will be the main speaker.	Announcements
12.01.08	Bill - Age 46 I had a crazy idea at age 45. I decided to climb Mount Kilimanjaro with no previous climbing experience. I never imagined the power of an idea would land me in the local, regional, national and international media. I never imagined that I would travel the	Sucess Stories
11.19.08	Part I: An introduction to sensory perception Jennifer Phillips is a postdoctoral research associate in the laboratory of Dr. Monte Westerfield at the University of Oregon. She uses the zebrafish as a model organism for studying the cellular and molecular function of Usher proteins in the retina.	Coverage
11.19.08	Part IV: Clinical management and research directions Part four of a detailed description of Usher syndrome by Jennifer B. Phillips, Ph.D. Jennifer is a postdoctoral research associate in the laboratory of Dr. Monte Westerfield at the University of Oregon.	Coverage
11.19.08	Stem cells restore hearing, vision in animals According to Reuters, stem cells from tiny embryos can be used to restore lost hearing and vision in animals. This research holds promise for humans.	Announcements
11.19.08	Part II: A complex molecular picture Part two of a detailed description of Usher syndrome by Jennifer B. Phillips, Ph.D. Jennifer is a postdoctoral research associate in the laboratory of Dr. Monte Westerfield at the University of Oregon.	Research
11.19.08	Part III: Regulating protein traffic in photoreceptor cells Part three of a detailed description of Usher syndrome by Jennifer B. Phillips, Ph.D. Jennifer is a postdoctoral research associate in the laboratory of Dr. Monte Westerfield at the University of Oregon.	Research
11.07.08	Kevin - Age 41 At age 36, having 5% vision and 10% hearing left, I got myself back on skates, something that I have great passion for. Four years later, after 120 races in short and long track, I’ve won 5 gold, 6 silver, and 11 bronze medals against able bodied skater	Sucess Stories
10.25.08	VisionWalk - Boston VisionWalk is the national signature fundraising event of the Foundation Fighting Blindness. VisionWalk Boston will be held October 25th, 2008 at Artesani Park on Soldier's Field Road in Brighton. A Kick-off luncheon will be held September 6th, 2008.	Announcements
10.04.08	Rockstar Karaoke and Auction HearSeeHope will be holding a fundraising event to benefit Usher Syndrome research October 4th at the Experience Music Project (EMP) in Seattle, Washington.	Announcements
07.10.08	Bella - Age 9 Bella is fearless, energetic, popular child who speaks flawless English, loves art and dancing, is an accomplished equestrian, and is soon to join the school chorus. She also has Usher Syndrome, was born profoundly deaf, and is experiencing the onset of	Sucess Stories
07.10.08	Rachel - Age 21 In 1989, I became one of the first 200 children in US to receive a cochlear implant as part of the FDA clinical trials. When my parents and I traveled to New York University, they hoped that I would at least hear traffic noise and other environmental soun	Sucess Stories