The Coalition for Usher Syndrome Research is dedicated to helping families cope with Usher Syndrome while working diligently to find a cure. Our goal is simple: Provide hope to families with Usher Syndrome. Hope here comes in many forms, from the opportunity to connect with other families, to the ability to access the latest information from the world's leading researchers, to the chance to directly participate in the search for a cure.
The Coalition counts a number of leading institutions and researchers among its members. We are truly national in scope with member institutions from coast to coast and more joining regularly. Beyond the United States, our members share information with the finest international institutions. In short, the Coalition for Usher Syndrome Research strives to be the best place for information on Usher Syndrome.
So please join us. There is hope.
The next International Symposium on Usher Syndrome will be held in conjunction with our sixth Usher Syndrome Family Conference in Boston, Massachusetts, July 10-12, 2014.
Overview of a study to improve the molecular diagnosis in families with USH2A by screening USH2A for duplications.
We can't yet declare victory over Usher syndrome, but we can celebrate the advances we're seeing in our research, and the growth and organization of our community.
In Part I, we talked about the need for increased federal funding for Usher syndrome research. Today we'll talk about the process for getting that funding.