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The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

  • Usher Syndrome Is Not Cancer

    'I am one of the luckiest people I know.' Carl has Usher II and loves challenging perceptions of deaf blindness. 'You should see the expression of the theater staff when I show up with a guide dog and ask for a ticket to a film.'

  • Usher Proud

    Two dads, their daughters and Usher syndrome. Father of 'Not Fade Away' author Rebecca Alexander shares some things in common with Mark Dunning.


Usher Syndrome Coalition Members: